People with epilepsy balance seizure management, medication side effects, and driving restrictions while coordinating between neurologists, emergency departments, and epilepsy monitoring units. When seizures affect memory and cognition, managing complex medical care becomes even more challenging.
Solace epilepsy advocates are experienced medical professionals who:
Your advocate manages healthcare complexities while you focus on seizure control.
Best of all, most Medicare patients pay nothing out of pocket.
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Understanding seizure patterns helps optimize treatment. Your advocate helps maintain detailed seizure logs, identifies potential triggers, and ensures neurologists have complete information. They coordinate video EEG monitoring when needed and help interpret results for better seizure management.
Anti-seizure medications require careful monitoring and adjustment. Your advocate ensures timely blood level checks, coordinates dosage changes with your neurologist, and manages insurance approvals for expensive medications. They help balance seizure control with manageable side effects.
Seizure emergencies require quick, appropriate response. Your advocate helps create seizure action plans, ensures family members know when to call 911, and coordinates rescue medication prescriptions. They maintain updated medical information for emergency responders and coordinate follow-up after ER visits.
With Solace, you get both a patient advocate and a supporting physician, which we refer to as your “care team”.
Your advocate will be there to manage the day to day aspects of your care: coordinating with doctors, researching potential solutions and communicating updates to you.
Your supporting physician can unlock resources for you and your advocate that might otherwise be out of reach.
When seizures break through despite medication, finding the right adjustment requires careful coordination and monitoring. Solace advocates track breakthrough patterns to identify triggers, coordinate urgent neurology appointments for medication adjustments, and ensure safe transitions between drugs. They manage complex medication schedules during changes, monitor for dangerous interactions, and coordinate blood level testing. Your advocate helps regain seizure control while minimizing disruption to your life.
When medications fail, options like VNS, RNS, or surgery may help, but accessing them requires extensive evaluation. Solace advocates coordinate comprehensive epilepsy center evaluations, arrange specialized testing including SPECT and PET scans, and navigate insurance approval for devices or surgery. They connect you with epileptologists at Level 4 centers, coordinate neuropsychological testing requirements, and manage the complex pre-surgical workup. Your advocate opens doors to advanced treatments beyond medication.
Epilepsy often means losing driving privileges, affecting work, social life, and independence profoundly. Solace advocates help you understand state driving laws for epilepsy, coordinate medical documentation for license reinstatement, and find transportation alternatives during restrictions. They assist with workplace accommodations, help access ride services or medical transport, and coordinate care to minimize time without driving. Your advocate helps maintain independence despite seizure-related restrictions.
Living safely with epilepsy requires education, planning, and support from family and community. Solace advocates arrange seizure first-aid training for family members, help seizure-proof your home environment, and connect you with epilepsy support groups. They coordinate with schools or employers about seizure response, ensure proper medical alert systems, and help families understand epilepsy's impact. Your advocate builds comprehensive safety nets while preserving your autonomy and dignity.