What to Do After a Dementia Diagnosis: Steps to Take and Support Options

A dementia diagnosis is life-changing, bringing immense uncertainty about the future. It’s natural to feel a mix of emotions—fear, sadness, even disbelief. While this journey may feel daunting, you don’t have to face it alone. There are steps you can take to maintain your independence, find support, and plan for what’s ahead.

This guide will help you navigate the next steps after a dementia diagnosis.

What Is Dementia?

Dementia is a condition that affects how your brain works. It can make you forget things and have trouble thinking or doing everyday tasks. Alzheimer's disease is the most common type of dementia.

Understanding Your Dementia Diagnosis

Receiving a dementia diagnosis can feel overwhelming, but learning more about the condition can help you prepare for the road ahead. The more you understand, the more in control you’ll feel.

• Talk to your doctor about what type of dementia you have and how it may progress. Knowing what to expect can help you make informed decisions about your care.
• Read books or visit trusted websites for easy-to-understand information. Resources like the Alzheimer’s Association or the National Institute on Aging can provide valuable guidance.
• Ask your doctor about available treatments and lifestyle changes that may help manage symptoms. Early interventions can improve your quality of life.

Taking the time to educate yourself about dementia can help you navigate the journey with confidence.

A Solace advocate can break down complex information and guide you through next steps.

Building Your Dementia Care Team

Managing dementia is easier with a strong care team. Surrounding yourself with the right professionals and loved ones ensures you get the best support.

• Involve specialists such as neurologists, geriatricians, and therapists who understand dementia care. These experts can provide medical guidance and treatment options.
• Share your diagnosis with close family and friends so they can offer emotional and practical support. Keeping open communication helps loved ones understand your needs.
• Consider hiring trained caregivers or exploring home health services if additional help is needed. Having experienced professionals involved can ease daily challenges.

A well-rounded care team can make a significant difference in your well-being.

A Solace advocate can help you coordinate care, connect with specialists, and find available resources.

Steps to Take After a Dementia Diagnosis

After a dementia diagnosis, taking proactive steps can help you stay in control, find support, and plan for the future.

Coping with the Emotional Impact

A dementia diagnosis can bring up a range of emotions, from fear and sadness to frustration and uncertainty. Processing these feelings in a healthy way can help you move forward.

• Write in a journal to express your thoughts and track changes in your mood over time. Putting emotions into words can provide clarity and comfort.
• Talk to a counselor or therapist who specializes in dementia-related concerns. Professional guidance can help you manage anxiety, grief, or stress.
• Join a dementia support group, either in person or online. Sharing your experience with others who understand can be reassuring.

Adjusting to a diagnosis takes time, and everyone copes differently. Surrounding yourself with a strong support system can make the journey easier.

Talk to a Solace advocate to learn more about your dementia support options.

Questions to Ask Your Doctor

After receiving a dementia diagnosis, it’s important to ask the right questions. Being informed helps you feel more in control of your care.

• What type of dementia do I have, and how will it progress? Understanding your condition can help you prepare for future changes.
• What treatment options are available to manage symptoms? Medications and lifestyle changes may help slow progression and improve quality of life.
• Are there clinical trials or new treatments I should consider? Research is ongoing, and participating in studies could offer additional options.
• What safety precautions should I take as my condition changes? Your doctor can offer recommendations for home modifications, driving, and daily routines.

Bringing a trusted friend or family member to your appointment can help ensure all your concerns are addressed. Writing down answers can also be useful for reference later.

Let a Solace advocate help you navigate medical conversations.

Legal and Financial Planning

Taking care of legal and financial matters early can prevent stress down the road. Making these decisions now ensures your wishes are respected.

• Draft a will and designate a power of attorney while you are still able. These documents allow you to outline your preferences for medical and financial decisions.
• Organize all important documents, including insurance policies, bank statements, and healthcare directives. Keeping everything in one place makes it easier for loved ones to assist when needed.
• Meet with an elder law attorney or financial planner. Professional guidance can help you protect your assets and plan for long-term care.

Addressing legal and financial matters early provides peace of mind for both you and your family. Having everything in order reduces uncertainty about the future.

Get help planning for your future with Solace.

Community and Professional Support

Navigating dementia is easier with the right support. Many organizations and professionals specialize in helping individuals and families through the process.

• Look into local services such as in-home caregivers, transportation assistance, and respite care. Many community programs offer free or low-cost support.
• Reach out to dementia-focused charities like the Alzheimer’s Association or your local aging services office. These organizations provide education, helplines, and advocacy.
• Consider working with a Solace advocate to coordinate care, find financial assistance, and connect with specialists. Having an expert on your side can make a big difference.

Accessing available resources can ease the burden and help you maintain independence for as long as possible. Support is out there—you just need to reach out.

Find the right support today.

Staying Healthy with Dementia

Maintaining physical and mental health can improve your quality of life and slow the progression of symptoms. Small lifestyle changes can have a big impact.

• Eat a balanced diet rich in fruits, vegetables, whole grains, and lean proteins. Proper nutrition supports brain health and overall well-being.
• Engage in physical activity that fits your ability level, such as walking, stretching, or swimming. Regular movement keeps your body strong and reduces fall risks.
• Stimulate your brain with activities like puzzles, reading, or learning a new hobby. Keeping your mind active can help maintain cognitive function.

Prioritizing your health helps you feel better both physically and emotionally. Consistency is key—small, daily habits make a lasting difference.

Work with a Solace advocate to create a wellness plan.

Driving and Safety Considerations

At some point, dementia can affect your ability to drive safely. Planning ahead can help you transition to alternative transportation smoothly.

• Schedule a driving assessment with a specialist. A professional evaluation can determine whether it’s still safe for you to drive.
• Research local transportation services, ride-sharing options, and community programs. Having a plan in place makes it easier to stay mobile without a car.
• Involve family members in the conversation about driving. Loved ones can help monitor changes in your abilities and offer support when it’s time to stop driving.

Letting go of driving can be emotional, but safety comes first. Planning ahead allows you to stay independent while reducing risks.

Need help finding transportation? A Solace advocate can help you find local resources.

Planning for Future Care

Making care decisions early ensures your preferences are honored. Advance care planning provides clear instructions for loved ones.

• Create an advance directive or living will that outlines your medical care wishes. This document ensures your voice is heard even if you’re unable to communicate later.
• Discuss future care preferences with family members. Decide where you would like to receive care—at home, with family, or in a facility.
• Appoint a healthcare proxy who can make medical decisions on your behalf if needed. Choosing someone you trust is important.

Planning ahead provides clarity and relieves loved ones from making difficult decisions alone. Taking control of your future is empowering.

Start planning for your care with the help of a Solace advocate.

Creating a Memory Book

Recording memories can be a meaningful way to preserve personal history. A memory book helps you and your loved ones cherish important moments.

• Gather photos, stories, and mementos from different stages of your life. Arranging them in a scrapbook or digital album can create a lasting keepsake.
• Write down key memories, favorite songs, and important life events. Recalling positive moments can bring joy and stimulate cognitive function.

A memory book can spark conversations and strengthen connections with loved ones. It’s a way to celebrate your story while keeping your mind engaged.

Books and Educational Resources

Learning more about dementia can help you and your family navigate the journey with confidence. Many books and websites provide reliable information and guidance. Here are some options:

• "The 36-Hour Day" by Nancy L. Mace & Peter V. Rabins: A comprehensive guide for families and caregivers.
• Alzheimer’s Association (www.alz.org) – Offers resources, support groups, and the latest research.
• "Dementia Reimagined" by Tia Powell, MD: A thoughtful exploration of dementia care and living well with the condition.

Expanding your knowledge can help you feel more prepared and in control. Accessing reliable information makes a difference.

How Medicare Can Help with Dementia Care

Medicare covers many healthcare services for individuals with dementia, but navigating the system can be complicated. Understanding your benefits can help you access the care you need.

• Medicare Part A covers hospital stays, skilled nursing care, and some home health services. If hospitalization or rehabilitation is needed, these benefits can help with costs.
• Medicare Part B includes doctor visits, outpatient services, and diagnostic tests. Regular medical checkups are essential for monitoring dementia progression and managing symptoms.
• Medicare Advantage (Part C) and supplemental plans may offer additional benefits, such as prescription drug coverage, care coordination, and in-home support. Reviewing your options can help maximize your coverage.

Medicare doesn’t cover long-term care, but there may be programs to assist with caregiving costs. A Solace advocate can help you explore your Medicare benefits and find financial assistance.

Get help understanding your Medicare options.

Get Expert Help From a Solace Advocate

Making a plan now can help you feel more in control of your future. A Solace advocate is here to help.

Talk to an advocate.

FAQ: Common Questions on What to Do After a Dementia Diagnosis

What should I do immediately after receiving a dementia diagnosis?

Upon receiving a dementia diagnosis, it is crucial to have an in-depth discussion with your doctor to understand your specific type of dementia and its progression. Gather all relevant medical records and consider reaching out to dementia support groups or a patient advocate to guide you through the next steps. Taking immediate action by educating yourself and seeking support can empower you to manage your condition effectively.

How can I inform my family about my diagnosis?

Sharing your dementia diagnosis with family members is best done in a comfortable and private setting. Be honest and open about your feelings and the support you may need from them. Remember, your loved ones care about you and will likely want to support you through this journey, so involving them early can strengthen your support network.

What types of care options are available for someone with dementia?

There are several care options available for individuals with dementia, including home care with professional caregivers, assisted living facilities, and specialized memory care units. Discuss these options with your care team and a Solace advocate to determine which best suits your needs and preferences. Exploring these choices thoroughly can help you make informed decisions about your future care.

How do I create a care plan for myself or my loved one?

Creating a comprehensive care plan involves collaboration with healthcare professionals, family members, and possibly a patient advocate. This plan should include medical treatments, daily activities, safety measures, and support systems to ensure holistic dementia care. A well-structured plan provides comfort and direction, helping you or your loved one manage the condition effectively.

What should I include in my daily routine to manage dementia?

To manage dementia effectively, incorporate structured routines that include regular times for meals, medications, physical activities, and mental stimulation like puzzles or reading. Social interactions and periods of rest are also important for maintaining overall well-being. Keeping your days structured can help manage symptoms and maintain a sense of normalcy.

Find an Advocate today

This article is for informational purposes only and should not be substituted for professional advice. Information is subject to change. Consult your healthcare provider or a qualified professional for guidance on medical issues, financial concerns, or healthcare benefits.